info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here
Will you be joining us this year in Palmerstown House Estate for our annual SBHI Golf Classic??
You can register your team here: form.jotform.com/sbhireland/golfclassic
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Our first Spina Bifida Hydrocephalus Ireland (SBHI) guest for our outdoor broadcast is Leah, talking about her taekwondo!
Tune in live: live.phoenixfm.ie/
Listen back: m.mixcloud.com/925PhoenixFM/
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Listening now guys are doing great
Super proud Momma well done Leah Devins , Gary , and team Aisling Nic Eochaidh Sbhi 👏👏👏👏👏
Get Rare Aware! Join us at 12.30pm today for our online event for people living in HSE region Dublin and South East (South-East Dublin, Carlow, Kilkenny, South Tipperary, Waterford, Wexford and most areas of Wicklow) to support our call for urgent action to expand the newborn heel prick test screening services provided in the first days of life to babies born in Ireland by registering at: www.eventbrite.ie/e/get-rare-aware-briefing-hse-dublin-and-midlands-health-region-tickets-8674197... #GetRareAware
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The SBHI What Works For Me team will be attending the AHEAD Building the Future Careers Event for school leavers and graduates on 29th May in Dublin City Centre. We invite anyone who would like to attend with us to reach out.
Please feel free to contact us if you need support such as assistance with CVs or travel arrangements for the event.
Contact us at whatworksforme@sbhi.ie or on 0871889941Kickstart your career with #btfAHEAD! Our annual careers fair which connects disabled students and graduates with leading Irish employers. Experience a mock-interview, get feedback on your CV, have a professional headshot photo taken or get chatting with employers in the industry you want to work in.
More information or sign up now for €5 - buff.ly/3P8lYAs
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SBHI Sports Day 2024 🏓
Congratulations to Shane Minto, pictured holding the cup for being awarded the 'The Spirit of Sports Day' Julieanne Bell Memorial cup award, presented by Gerry Bell. 🏆
Thank you to the below Clubs/People that contributed their time on Sunday at our Sports Day event.
We would like to send out a big Thank You to all the Clubs/People that contributed their time to facilitate taster sessions at our Sports Day.
These included:
Table Tennis Ireland / John Finn
Boccia Ireland / Padraic Moran and Lisa Callaghan
Infinity Movement / Shauna Finn
Taekwon-Do ITF Warriors Inclusion / Helen & Aaron
Badminton Ireland / Kerrie McCarthy
Gerry and Breda Bell
Celbridge Access Group
Community Garda Chris Fallon
Irish Red Cross
Leixlip Amenities Sports Centre
Crafty Cafe
If anyone would like contact details for any of the clubs please contact Sharon Reville at sreville@sbhi.ie or PH: 087-9799-426
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SBHI is proud to be a campaign partner for this year's #GetRareAware campaign by Rare Diseases Ireland.
At 12.30pm on Thursday, 18th April 2024 they will be holding an online launch of the Get Rare Aware campaign for people living in HSE Dublin and Midlands. At the launch, you will hear from Vicky McGrath, CEO of Rare Diseases Ireland, and others on the importance of the newborn screening heel prick test for early diagnosis and treatment.
You can register for this event here:
www.eventbrite.ie/e/get-rare-aware-briefing-hse-dublin-and-midlands-health-region-tickets-8674197...
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Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
