info@sbhi.ie 
+353 (0)1 457 2329 
Welcome to
Enriching and enhancing the lives of those in Ireland who are living with Spina Bifida and/or Hydrocephalus, and the lives of their families and wider circle
We aim to foster an environment in which every person living with Spina Bifida and/or Hydrocephalus can lead a fulfilled life
We provide essential information, support and advice to everyone living with Spina Bifida and/or Hydrocephalus
We believe in, and seek to realise, a socially inclusive and equal society for all people living with Spina Bifida and/or Hydrocephalus
We enable our members to get the very best from health, education, and social services by lobbying the Government
Spina Bifida and Hydrocephalus are two distinct but sometimes related medical conditions.
We have loads of fundraisers, social nights, respites and events throughout the year. Check out some of our upcoming events here
SBHI Sports Day 2024 🏓
Congratulations to Shane Minto, pictured holding the cup for being awarded the 'The Spirit of Sports Day' Julieanne Bell Memorial cup award, presented by Gerry Bell. 🏆
Thank you to the below Clubs/People that contributed their time on Sunday at our Sports Day event.
We would like to send out a big Thank You to all the Clubs/People that contributed their time to facilitate taster sessions at our Sports Day.
These included:
Table Tennis Ireland / John Finn
Boccia Ireland / Padraic Moran and Lisa Callaghan
Infinity Movement / Shauna Finn
Taekwon-Do ITF Warriors Inclusion / Helen & Aaron
Badminton Ireland / Kerrie McCarthy
Gerry and Breda Bell
Celbridge Access Group
Community Garda Chris Fallon
Irish Red Cross
Leixlip Amenities Sports Centre
Crafty Cafe
If anyone would like contact details for any of the clubs please contact Sharon Reville at sreville@sbhi.ie or PH: 087-9799-426
7 CommentsComment on Facebook
SBHI is proud to be a campaign partner for this year's #GetRareAware campaign by Rare Diseases Ireland.
At 12.30pm on Thursday, 18th April 2024 they will be holding an online launch of the Get Rare Aware campaign for people living in HSE Dublin and Midlands. At the launch, you will hear from Vicky McGrath, CEO of Rare Diseases Ireland, and others on the importance of the newborn screening heel prick test for early diagnosis and treatment.
You can register for this event here:
www.eventbrite.ie/e/get-rare-aware-briefing-hse-dublin-and-midlands-health-region-tickets-8674197...
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We had such fun today hosting our Sports Day! 🙌🏻
4 CommentsComment on Facebook
Well done to all. Great event for most.
Was there and had a great day. Thank You
Such a great day
JOIN TEAM SBHI!
Sign up today for the VHI Women's Mini Marathon Vhi Women's Mini Marathon and get a FREE TEAM SBHI T-shirt to wear on the day! 👕
How to sign up?
> Go to www.vhiwomensminimarathon.ie/
>Select whether you wish to run in Dublin, or virtually.
>Fill in your details
>Select the option to create a fundraising page and choose Spina Bifida Hydrocephalus Ireland from the dropdown
>Proceed to checkout
Once registered, please contact Noelle at njordan@sbhi.ie to arrange postage/collection of your free T-Shirt.
We hope to see you there! 😁
#vhiwmm #teamsbhi
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We are heartbroken to share with you all of the passing of our Dear Friend Frankie.
Frankie was a lifelong best friend of Hellen Martin & Tiny and a beloved Member of the Open Opportunity Service.
Frankie was everyone’s friend, always smiling and helpful and had a heart of pure gold. Frankie had achieved so much during his time in the Day Service and was so so proud of these achievements. He was looking forward to all that was to come and was extremely happy. We take solace in this and in the beautiful memories that will stay with us forever. You will be missed everyday our Forever Friend❤️
31 CommentsComment on Facebook
I’m heartbroken to read of the passing of Frankie such a beautiful soul .. I loved our chats .. I’m so glad I hugged him the last time we met .. rest in peace you wonderful man 💕
Rest in peace Frankie 🙏You will be missed by all and will always be remembered for your friendship. From your little pal Roisin 😢❤
Fankie was a true Gentleman, always very happy and ready to help everyone. Rip😦
Welcome to the SBHI Learning Hub!
This site contains modules and short courses on topics that impact the lives of those living with Spina Bifida and/or Hydrocephalus their families, carers, and the wider community. We hope that you enjoy your learning experience.
Short courses on topics that impact the lives of those living
with Spina Bifida and/or Hydrocephalus
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
4 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
3 hours 20 minutes
SBHI Staff, Services Staff,External Organization,School User Services,Family Careers
25 minutes
Each month we send out an email full of updates on what each department has been up to , upcoming events and things to note. Sign up today to be receive this monthly update in your inbox
Scroll through our video library for information on the conditions
and the various services we offer
Spina Bifida Explained
We rely so heavily on the generosity of other in order to continue to offer the services that we do. Every donation goes directly towards providing these and all are so greatly appreciated.
If you are considering holding a fundraiser in aid of SBHI please fill out the contact form to the right, or you can make a direct donation by clicking the ‘Donate’ button below.
Donate Now
